Friday, May 23, 2014

Matthew's Story

This is the essay my 14 year old wrote about his struggle to control his OCD and get a handle on the anxiety that comes with it.

I used to believe that I was stupid, worthless, and beyond hope. I was so depressed I could barely get out of bed every morning. I couldn't imagine being happy again. I couldn't believe that there was ever going to be a time in my life when I felt good about myself. I was ten years old and I felt like my whole life was pointless. It might be hard to imagine a ten year old feeling that way, but I assure you, things were that bleak for a while. I had a very hard time believing in myself and having the confidence to work my way out of the things. I have ADHD (Attention Deficit Hyperactivity Disorder). You might be thinking, “Big Deal, lots of kids have ADHD and they are perfectly happy kids who get out of bed every morning and have great lives”. This is true, but it is what comes along with my ADHD that makes life just a little more interesting. Because what I have can't be seen in an x-ray, or shown on a medical test, some times people have had a hard time believing me when I say I am having trouble. In addition to my ADHD I have OCD, (Obsessive Compulsive Disorder). OCD makes me worry, it makes me anxious. If you look at me you would never guess that I have ADHD or OCD. I also have Sensory Integration Disorder. SID makes it hard for your brain to sort out all the signals that are coming to it at the same time. It makes you even more frustrated, because you can't understand how something is “supposed to be normally”. The three things together can make you one confused kid. Looking at me, you would never guess that just four years ago I had to leave school for a while and figure out how to make things work. I had to learn how to believe in myself. I had to learn to believe that everything would be okay again. I had to learn to believe that my dreams could come true. I had to learn how to inspire myself.

My big dream is to become a Marine Biologist. Before I can even think about that I have to make some smaller dreams come true along the way. I used to dream that I could be just like all the other kids in my class. By that I mean that it was a dream to me to be able to get through a week without having to be sent home for a behavior problem. I had a very hard time separating my anxiety about something that might happen from what was really happening around me. I would begin to worry and before I knew it I was angry and frustrated about things that no-one but I understood. I wasn't even able to explain why I was so worried. Things that were very real to me seemed trivial or silly to people around me. For example, one day, a classmate told me that they were going to “get rid of Sonic the Hedgehog”. That may seem like a very small thing to someone else, but to me it was a horrible blow. One of the few things that made me happy during that time in my life was playing video games. I worried about this all day long, the next time someone said something about Sonic I really lost my cool and had a full blown panic attack. I was actually physically ill about the idea. It took me a long time and a lot of work to be able realize my dream of making it through a whole week of school without having to go home early, but I did make that dream come true. I had another dream that I would be able to go to school and not have anyone know that I had an issue with anxiety. These days it seems like everyone has ADD or ADHD, so that is not such a big deal, but not that many kids (or adults) understand OCD and the effects it can have on the way you deal with people and situations. I just wanted everyone to think of me as a normal kid who was a little spacey every now and then.

When I was ten school was torture, I would dread Mondays so much that I would make myself sick to my stomach on Sunday night. I would dream of summer vacation, snow days, and natural disasters that would keep me from going to school. I wanted another Ice Storm so badly I could close my eyes and imagine it. My life today is totally different. Some of the kids I have class with know that I have ADHD and that sometimes I do things a little differently. I stand in class sometimes to help me focus better, I type sometimes instead of writing, and sometimes I have to leave the room if it gets too loud or chaotic. They just accept that as part of who I am, no one thinks anything of it. Most of my classmates are extremely helpful and encouraging. That is another dream fulfilled.

Step by step, and small dream by small dream I am working my way towards my big dream of being a Marine Biologist. This summer I took a big step toward making that dream come true by taking a S.C.U.B.A. diving class. I love being surrounded by water. It is so peaceful in the water, one of the few places in the world I can find true peace and quiet. This class helped inspire me to move forward toward my dream. Becoming a Marine Biologist will require not just a college degree, but eventually a PhD. Just a few years ago I didn't believe I would get out of fourth grade, and now I am inspired to go to Graduate School.

I am inspired by things around me, and I have been inspired by the people who helped me get to this point, but I think my greatest accomplishment has been learning to inspire myself. When I think about how far I have come in just a few years, I am very proud of myself. I have worked hard to learn how to talk to myself in a positive way. I have learned how to keep my worry and anxiety under control when it seems like they might take over. I still have rough days, but when I look back on that ten year old who honestly didn't want to get out of bed for a couple of months I am inspired to realize that he is now a happy, friendly, person whom people like . If somewhere along the way I happen to inspire someone else who has had a problem like mine and is having a hard time finding their way to their dreams, that would be great, but right now, it is enough for me to be able to tell myself that everything is going to be okay. A few years ago I couldn't believe that, whether it came from my parents, teachers, or doctors. The boy that dreamed of natural disasters to keep him home from school now dreams of Graduate School, the boy who dreamed of having a friend now dreams of what they will do together next. Now the voice telling me everything is okay, and that my dreams are in reach is my own, that is inspiring, that is my dream come true.